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Resource Finder at Kennedy Krieger Institute
A free resource that provides access to information and support for individuals and families living with developmental disabilities.
Botulinum Toxin Treatment Program
Kennedy Krieger Institute • 707 N. Broadway • Baltimore, MD 21205
About Our Program:
Children, adolescents, and adults with limited functional range of motion due to spasticity or dystonia are evaluated and treated with botulinum neurotoxin when appropriate. An intervention plan is designed to address the specific needs of each patient in collaboration with the family and the patient's therapists.
The ideal patient has a clearly identified muscle or group of muscles that interferes with progress in therapy or that makes caring for them more difficult.
Since the treatment is given by intramuscular injection, we use a vapo-coolant spray to numb the skin just before the treatment. Age-appropriate toys, favorite blankets, music, or any item that would be comforting are welcome.
You may begin to see results 24 hours after the injection, but usually not for two or three days. Maximum effects are seen between one and two weeks and will probably last for several months.
Every patient is different and outcomes will vary. Re-evaluation by therapists and the treating physician is recommended to determine whether additional botulinum neurotoxin treatments would be of benefit in achieving therapeutic goals.
An effective treatment is almost always associated with an ongoing therapy program. Therefore, physical or occupational therapy should be included in the treatment plan. It is helpful to have the patient's therapists contact the treating physician before and after the botulinum neurotoxin is given so they can discuss the treatment goals.
Primary Program Goals:
The primary goal is to improve the functional range of motion through focal relaxation of targeted muscles using injections of botulinum toxin. Specific goals may include the following:
- Improve gait
- Improve upper extremity function
- Prevent deformity
- Improve positioning
- Delay surgical intervention
- Decrease pain
- Improve tolerance of splints
- Improve hygiene
- Decrease burden of care
Medical Staff Providers:
This program has been in operation for over 15 years. More than 800 patients have been treated, and more than 1000 treatments have been given. No serious side effects have been reported. Many patients have benefited from the interventions.
To make a referral or request an initial evaluation:
Contact our Care Management Office
Toll-Free Referral: (888) 554-2080
Local Referral: (443) 923-9400
For follow-up appointments:
Contact our Broadway Care Center: (443) 923-2600