Research Initiatives

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The long-term vision for our research is the development of new, more effective treatments for Sturge-Weber syndrome. To that end, we welcome collaborations with other centers and foundations. Only by bringing together the resources, expertise, patients and people from around the country and the world, can we maximize the efforts already made to better treat and prevent SWS. 

ANNOUNCEMENT: Clinical Trial For Sturge-Weber Syndrome at the Kennedy Krieger Institute has just received Institutional Review Board and FDA approval! Learn more >

NIH Funds Clinical Studies of Sturge-Weber Syndrome for 5 More Years

Please note that this information is provided for informational purposes only to those interested in supporting our work and is not for recruitment.

If you would like to participate in a study or for more information, call Dr. Anne Comi at (443) 923-9569 or email: comi@kennedykrieger.org.

Read about our current studies to:

Improve Clinical Care of Sturge-Weber syndrome
Improve Diagnosis and Monitoring of Sturge-Weber syndrome
Better Understand the Pathogenesis (Cause) of Sturge-Weber Syndrome

Read about our completed studies to:

Improve Diagnosis and Monitoring of Sturge-Weber syndrome
Improve Clinical Care of Sturge-Weber syndrome

Understand the Pathogenesis of Sturge-Weber syndrome