Philip A. Keelty Center for Spina Bifida and Related Conditions Programs & Services

The Philip A. Keelty Center for Spina Bifida and Related Conditions at Kennedy Krieger Institute offers a variety of programs and services created to assist individuals with spina bifida and related conditions in leading healthy and satisfying lives. The programs and services offered through the center include:

Multidisciplinary Spina Bifida Clinic (MDSBC): Meets the second, fourth and fifth Fridays of the month. Includes specialists in pediatrics, neurosurgery, urology, orthopedics, physical therapy, occupational therapy, neuropsychology, social work and nursing. Routine kidney and bladder ultrasounds are also arranged as part of this clinical program. We recommend that all individuals with spina bifida and related conditions follow-up in MDSBC in order to monitor longitudinally for problems and to prevent secondary conditions. For individuals over one year of age, routine multidisciplinary follow-up is recommended every six months. For infants younger than one, follow-up is recommended every three months. More frequent follow-up is also indicated for those individuals with active problems, or those who need extensive training to learn a new skill such as bowel or bladder continence training.

General Spina Bifida Care: Dr. Levey and nurse practitioner Susan Demetrides have office hours outside of MDSBC to provide general medical consultation for individuals with spina bifida or related conditions. New patients to the Spina Bifida Center are evaluated first by these providers before being referred to MDSBC.

Continence Management: The Keelty Center staff have developed expertise in managing incontinence due to a wide variety of conditions. Evaluation and management of urinary and bowel incontinence is offered through this clinic. We are developing an interdisciplinary approach that includes nursing, behavioral psychology and occupational therapy. Continence Clinic appointments are usually available the first and third Fridays of the month.

Wound Care: We offer medical consultation regarding management of chronic wounds and decubitus ulcers for individuals with spina bifida and related conditions, as well as for any child with a chronic wound.

Interesting Trends:

The Spina Bifida Center is receiving an increased number of referrals of adults due to a lack of adult facilities with expertise in this area; it is also identifying previously undiagnosed neurocognitive dysfunction in this population.