News & Updates
Potential magazine informs readers about the latest institute news and advances in research, patient care, special education, and community programs.
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Rockin' On the Bay on April 26th
Baltimore, MD - The Chesapeake Bay will be rockin' and rollin' at the annual Bands on the Bay event, Sunday, April 26. A music-filled afternoon for the entire family, Bands on the Bay will feature the Doug Segree Band and Orlando Phillips, the former lead vocalist of the Caribbean music group Mama Jama. NFL Pro Bowler and current New York Jets player Alan Faneca will make a special appearance while guests enjoy the live music and great food and drink. Additionally, guests will have the opportunity to bid on exclusive silent and live auction items including sports and entertainment memorabilia.
Bands on the Bay is a fundraiser organized by the family of Jenna Heck, an Annapolis-area toddler born with a rare disorder called Sturge-Weber Syndrome (SWS). SWS is most readily identifiable by a port wine birthmark on the face of those affected and also characterized by blood vessel abnormalities in the brain, skin, and eyes, which in turn cause countless health complications including seizures and glaucoma.
All funds raised at the event will benefit the Sturge-Weber Center at Kennedy Krieger Institute. To date, the event has raised more than $500,000 - critical dollars to help continue to move research forward at the Center.
- 2009 Bands on the Bay
- A Concert and Auction Benefiting the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute
- Sunday, April 26, 2009
- 1 p.m. 6 p.m.
- (Rain or Shine)
- Herrington on the Bay
- Route 261, West Friendship Road
- Friendship, MD 20758
- Advance Ticket Sales by April 15: $75 per person
- At-The-Door Ticket Sales:$100 per person
FOR MORE INFORMATION: Visit www.bandsonthebay.org or call (410) 980.6515
Sturge-Weber Syndrome is a congenital, non-familial disorder of unknown incidence and cause and characterized by a congenital facial birthmark and neurological abnormalities. The Kennedy Krieger Institute's Hunter Nelson Sturge-Weber Center takes a multi-disciplinary approach to the care of patients with Sturge-Weber Syndrome (SWS), educating patients and families, and conducting clinical research in order to improve future treatments. For more information, visit www.kennedykrieger.org.
Jamie Watt or Jessie Benson, 410.243.3790