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News & Updates
Resource Finder at Kennedy Krieger Institute
A free resource that provides access to information and support for individuals and families living with developmental disabilities.
Bands On The Bay
(Baltimore, MD) - A special day of festive music on the waterfront will raise funds in honor of Jenna Heck, a toddler who was born with a rare condition called Sturge-Weber Syndrome. "Bands on the Bay" is an afternoon of exciting musical entertainment, fantastic silent and live auctions, and delicious food, beer, and wine.
Orlando Phillips, the former lead vocalist of the Caribbean music group Mama Jama, will perform, as will other local musicians, Burnt Sienna Band and Doug Segree. Guests can mingle overlooking the Chesapeake Bay while bidding on exciting auction items like trips to Pebble Beach, Australia, the 2007 Masters Tournament, Las Vegas, and Ocean City as well as a plasma TV, tickets to Ravens and Redskins games, and more.
All funds raised at the event will benefit the Kennedy Krieger Institute Sturge-Weber Syndrome Center.
|WHAT:||Bands on the Bay|
|WHEN:||Sunday, April 30, 2006
Noon - 5 p.m.
(Rain or Shine)
|WHERE:||Herrington on the Bay
|COST:||$80 per person
Please register by April 7th
|MORE INFORMATION:||Visit www.bandsonthebay.org|
Sturge-Weber Syndrome is a congenital, non-familial disorder of unknown incidence and cause and characterized by a congenital facial birthmark and neurological abnormalities. The Kennedy Krieger Institute Sturge-Weber Syndrome Center for Excellence offers a multi-disciplinary approach to the care of patients with Sturge-Weber Syndrome (SWS), educating patients and families, and conducting clinical research in order to improve future treatments. For more information, visit www.kennedykrieger.org.
Susan Goodell/Caitlin McIntyre, (410) 243-3790