Feature Stories

Feature Stories for Potential Online

Operation Save Megan

Kristina
Rolfes
August 1, 2014
A military dad requested and received a compassionate reassignment to Baltimore so his daughter can once again receive the expert care she needs for her rare genetic disorder at Kennedy Krieger.

Megan MiceliWith her big bright eyes, auburn curls, and contagious giggle, 6-year-old Megan Miceli is truly one in a million. You could even say she’s one in a billion— Megan has a genetic disorder so rare that only a handful of cases have been reported in the world.

The Fight of His Life

Kristina
Rolfes
August 1, 2014
After a brain tumor blindsided Kokayi and left him without the ability to walk, talk, or even swallow, he fought to get his life back.

Kokayi Thomas with his motherFifteen-year-old Kokayi Thomas had always been healthy and athletic, until last November when he started complaining of weakness in his right arm and leg.

Born to Run

Kristina
Rolfes
August 1, 2014
Despite severe autism and catatonia, Jamie Schneider’s triumphs have been far greater than his disability.

Jamie SchneiderJamie Schneider has profound autism and cannot speak. The 23-year-old from New York cannot cross the street alone and requires constant supervision. But when he’s running, he is free.

The Comeback Kid

by Abigail
Green
November 13, 2013
The Neurobehavioral Unit at Kennedy Krieger helps turn around a young boy with self-injurious and aggressive behavior.

Luke McNair happyChrissy McNair describes her son Luke, 13, as “one of the happiest kids I’ve ever met.” He usually wakes up in a good mood and likes cracking jokes with his two brothers. He loves Top-40 music and animals, and has been riding horses since he was 3 years old. “The best word for him is passionate,” says his mother.

Beating the Pain

by Kristina
Rolfes
November 12, 2013
After multiple doctors could not help relieve her suffering from pain so severe she could no longer walk, Katie Bickford sought help at Kennedy Krieger’s Pediatric Pain Rehabilitation Program and today, she has her life back.

Katie Bickford truckKatie Bickford remembers the pain starting in the 7th grade—it began in her spine and radiated out all over her body. The pain got so bad she couldn’t walk. To make matters worse, she fractured her heel, and then her arm, so it hurt to use crutches.

Stronger

by Kristina
Rolfes
November 12, 2013
After cancer and chemotherapy left her so fragile doctors said she might never walk again, Perry found her strength with the help of Kennedy Krieger’s Specialized Transition Program.

Perry ZimmermanAt the tender age of 13, Perry Zimmerman has already battled a lifetime’s worth of illnesses. Born with retinoblastoma, a type of eye cancer, Perry developed a related brain tumor at age two that doctors did not expect her to survive.

Resources and Training for Families of Adolescents with Disabilities

by Kristina
Rolfes
August 2, 2013
Kennedy Krieger’s Maryland Center for Developmental Disabilities offers resources, services, and trainings to help families understand and address transition-related issues.

Maureen van Stone of Project HEAL helped Jeffrey West get the school services he needed.Any family who has an adult with a disability can tell you that adult service systems are complex.

Transitioning into the Great Unknown: Adulthood

August 2, 2013
Navigating the path to adulthood can be at turns frustrating, overwhelming, and rewarding.

By: Allison Eatough and Kristina Rolfes

Unbroken

by Kristina
Rolfes
August 2, 2013
For Pfeiffer’s family, every little milestone is a miracle, thanks to the International Center for Spinal Cord Injury.

Pfeiffer WhiteleyAt 4 years old, Victoria “Pfeiffer” Whiteley is funny, precocious, very charming, and wise beyond her years. She loves dresses with flowers, Barbies, and all things girly. She is also partially paralyzed, a result of transverse myelitis.

The World in His Arms

by Kristina
Rolfes
August 2, 2013
For a 14-year-old boy who lost his arms in a landmine explosion in Yemen, new prosthetic arms and rehabilitative therapy from Kennedy Krieger’s Limb Differences Clinic open up a world of possibilities for his future.

Mohammed KarimFour years ago, Abdul Karim heard an explosion just outside his house in Yemen. When he opened his door, his ten-year-old son, Mohammed, was standing in the doorway, covered in blood. Mohammed had spent that morning playing outside near his village. As the sun cast its light over the nearby mosque, Mohammed noticed a shiny object on the ground.

Syndicate content